Showing posts with label Action Needed. Show all posts
Showing posts with label Action Needed. Show all posts

Tuesday, July 27, 2010

IACC Comments Due

It's time to get your comments in! The public comment period for the Interagency Autism Coordinating Committee (IACC) Strategic Plan for Autism Spectrum Disorder Research closes this Friday, July 30, 2010, as stated in the IACC's reminder notice set forth below. The Autistic Self Advocacy Network encourages public participation in the proceedings of the IACC, which is a Federal advisory committee that coordinates all efforts within the Department of Health and Human Services concerning autism.



From: NIMH IACCPublicInquiries (NIH/NIMH)
Date: Mon, Jul 26, 2010 at 3:20 PM
Subject: The IACC RFI Closes This Week!



Reminder: IACC 2010 RFI to Inform the 2011 Update of the IACC Strategic Plan Closes This Friday, July 30, 2010

The IACC has issued a formal Request for Information (RFI) to solicit public input to inform the 2011 update of the IACC Strategic Plan for Autism Spectrum Disorder Research. During the six-week public comment period (June 18 – July 30, 2010), members of the public are asked to provide input to the committee on what has been learned in the past year about the issues covered in each of the seven chapters of the IACC Strategic Plan, and on what are the remaining gaps in the subject area covered by each chapter. In addition, the committee is seeking input on the introductory chapter and other general comments about the Strategic Plan. Comments collected through this RFI will be posted to the IACC web site after the closing date.

If you would like to respond to the RFI, please go to: http://www.acclaroresearch.com/oarc/2010rfi/. Responses will be accepted until this Friday, July 30, 2010.

Tuesday, December 8, 2009

Preventing Restraint and Seclusion in Schools

Seeking to protect children from dangerous restraint and seclusion in classrooms, U.S. Reps. George Miller (D-CA), the chairman of the House Education and Labor Committee, and Cathy McMorris Rodgers (R-WA), a member of that committee and Vice Chair of the House Republican Conference, are introducing new bipartisan legislation in a press conference to be webcast live from the Education and Labor Committee website at http://edlabor.house.gov/ at 11:00 AM EST on Wednesday, December 9, 2009.

A report by the U.S. Government Accountability Office on the inappropriate use of restraint and seclusion in classrooms shows that many students, including a disproportionate number of children with disabilities, have been injured and in some cases killed by these harmful practices. The federal government lacks policies to prevent the misuse of restraint and seclusion in schools, and many states also have failed to ensure adequate regulation and oversight.

ASAN is seeking volunteers to help with our advocacy of legislation to protect students against school abuse. To volunteer, please write to info@autisticadvocacy.org with the subject line "Restraint and seclusion" in your email.

Saturday, October 10, 2009

Protest at Autism Speaks Walk in Columbus

ASAN Central Ohio/Ohio State University will be protesting an Autism Speaks walk on Sunday. This information was crossposted from the ASAN Central Ohio blog.

Please join us as we protest the Autism Speaks walk for autism this Sunday, October 11 from 8:00am to 12:00pm. We'll be meeting at the corner of Fred Taylor Drive and Borror Drive, right by the 4-H Center, and this is where we'll carry out our protest. We are actively looking for volunteers and fellow protesters. Our protest has been sparked by, among other things, Autism Speaks' recent PSA, titled "I Am Autism," which presents autistic individuals as kidnap victims, burdens, and inhuman. In the video, autism is presented as a soul-stealing entity that ruins marriages, causes bankruptcy, triggers embarrassment, and erodes morality. Please join us (even if only for a short while) as we speak back to Autism Speaks and the discrimination that such a campaign perpetuates.

Campus map & driving directions: http://www.osu.edu/map/building.php?area=&building=191

Note on parking: The OSU Event Parking Coordinator is advising ASAN to park behind the 4H Center building in their parking lot. There are about 55-60 spaces available. Fred Taylor Drive (the road in front of the parking lot) will be blocked off at 10 a.m. to prepare for the walk, so everyone will need to be there before that time if they choose to park there. Getting dropped off near by or walking from main campus are the other options for coming later than 10am. Thanks!

Please contact us at asan.ohiostate@gmail.com with questions.

Tuesday, April 21, 2009

ASAN's Petition Telling Tony Attwood and Isabelle Hénault to End the Hate

The Autistic Self Advocacy Network is asking for your support in telling Dr. Tony Attwood and Dr. Isabelle Hénault, well known clinical psychologists in the field of Autism, to publicly renounce their associations with hate groups that promote the pseudoscientific concept of Cassandra Affective Deprivation Disorder invented by Maxine Aston. Groups such as FAAAS that promote the concept falsely claim that being in a relationship with an Autistic person causes a depressive disorder and that Autistics and people with neurological disabilities are likely to be violent and abusive toward family members. Such stereotypes have resulted in discrimination against people with disabilities who are involved in divorce and child custody cases. Drs. Attwood and Hénault are closely associated with these groups through their membership in FAAAS' Professional Advisory Panel and their history of appearances at conferences promoting the affective deprivation concept.

We hope that you will join us in signing this petition to help secure the rights of all people, regardless of disability, to be treated equally under the law. For those who also wish to e-mail directly, tony@tonyattwood.com.au is the e-mail address for Dr. Attwood and ihenault@internet.uqam.ca is the e-mail address for Dr. Hénault. In addition, ASAN President Ari Ne'eman has issued a statement on the importance of the petition to Dr. Tony Attwood and Dr. Isabelle Hénault. We appreciate your support in ending stereotypes and discrimination against our community.

Update, May 12: This post has been edited to remove a reference to a group that, in response to ASAN's concerns, has taken down an offensive article and has agreed to develop a more realistic and balanced website.

Thursday, August 21, 2008

Public Comment on Autism Research and Services

Self-advocates in the United States have an opportunity during the month of September to have our views heard by the Interagency Autism Coordinating Committee (IACC) and its Services Subcommittee. The more suggestions we submit regarding priorities for autism services and research, the more likely it is that our concerns will be taken into account. Here's how we can tell the government what we want:


On behalf of the IACC, the National Institute of Mental Health has issued two Requests for Information (RFI):

Response Due 9/30/08: IACC Draft Strategic Plan for ASD Research is Available for Comment. The purpose of this time-sensitive RFI is to seek comments on the draft Strategic Plan from ASD stakeholders such as individuals with ASD and their families, autism advocates, scientists, health professionals, therapists, educators, officials of state and local programs for ASD, and the public at large. Please see the official RFI notice NOT-MH-08-021 at http://grants.nih.gov/grants/guide/notice-files/NOT-MH-08-021.html for more information and instructions for responding by the deadline of September 30, 2008. Responses should be directed to iacc@mail.nih.gov. Please note: The draft Strategic Plan does not include cost estimates for implementation. However, the IACC has formed a workgroup to advise the IACC about the budgetary requirements needed to fulfill the research objectives described in the draft Strategic Plan. The IACC will review the workgroup recommendations at its next meeting on November 21, 2008.

Response Due 9/19/08: Priorities for the Interagency Autism Coordinating Committee Services Subcommittee for Autism Spectrum Disorders (ASD) The IACC is interested in receiving your input and ideas about high-priority questions and issues surrounding services and supports to people with ASD of all ages, and specific research initiatives on ASD services and supports. Please see the official RFI notice NOT-MH-08-016 at http://grants.nih.gov/grants/guide/notice-files/NOT-MH-08-016.html for more information and instructions for responding by the deadline of September 19, 2008. Responses should be directed to iaccservices@mail.nih.gov

For more information about the IACC, please see http://www.nimh.nih.gov/research-funding/scientific-meetings/recurring-meetings/iacc/index.shtml